Sexuality and Spinal Cord Injury (SCI)

You are a sexual being

People are born sexual. They remain sexual beings throughout their lives. A disability does not change that. It is never too early in your rehabilitation to think about, talk about, and explore issues around sexuality. If you have a partner, talk about your hopes and concerns. You may want to experiment to find out what feels good and how you can both have pleasure. If you don’t have a partner and are able to do so, explore your body yourself to learn how your responses have changed.

Intimacy is more than sex

After an SCI, your body has changed in many different ways. Time and support from others can assist with adapting to these changes. Emotional intimacy, closeness, desire, and love can be had with and without sex. Talk, share feelings and experiences, gaze at each other, and touch and caress each other. Establish and maintain emotional intimacy. This may help you feel more comfortable exploring physical ways to express your closeness. Focus on more than the sexual organs. Use all of your senses: sight, touch on other parts of your body, and imagination. The most important thing is to keep talking with your partner about what you both need and want.

Learning about sexuality and SCI

Living with SCI needs people to talk more often and to more people about personal topics. Sex is one of those topics. It is up to you how much you want to discuss and explore this issue. Your healthcare providers are trained to help you with this. They can be a great source of information. If you don’t feel comfortable speaking up, start by making a written list of questions or concerns you have. Then give this list to your provider. If you don’t get what you need at first, keep trying. Find a person in your team who you feel at ease talking with so you can get the guidance and support you need.

There have been many advances in treating spinal cord injuries. Medicines and devices have helped people with SCI to have better sexual function.

Questions you may have

When it comes to sex, you are likely to have many concerns. You may have questions about changes in function. These include erections, ejaculation, and orgasm. They also include fertility, pregnancy, prenatal care, and sexually transmitted infections. And you may want to know more about positioning, managing your bladder and bowel, or special precautions you need to take. Your healthcare providers can help with all these issues. For example, some adaptive equipment or medicines may be available for you. Don’t hesitate to bring up any of these issues and be sure to get the answers you need.

To learn more

For SCI support, go to:

• United Spinal Association at www.unitedspinal.org

• Christopher and Dana Reeve Foundation at www.christopherreeve.org

• Paralyzed Veterans of America at www.pva.org